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Nothing on this website should be construed as medical advice.
Mast cell disorders, particularly mast cell activation syndrome, pose a unique challenge to both healthcare providers and patients since there is very little cohesive education among providers and, as is the case with many “rare,” under-researched and under-diagnosed conditions, an abundance of misinformation and misunderstanding. Even the most responsible charitable organizations dedicated to educating the public about such a complex condition can be hobbled by legal complications, as well as by the research commitments, relationships, and ideologies of their boards and/or by lack of appropriate medical supervision.
No one can provide responsible medical advice through a website, particularly as regards such a complicated condition with such diverse presentations, and any recommendations here should be understood as those of a stranger who happens to have observed many mast cell patients over a significant period of time.